It was David’s
nine month checkup. He was not sitting up on his own. Eating issues were not
improving and his pediatrician asked us to bring him back at 10 months so that
she could check on his motor skills and development. So, we returned. At 10
months he finally was sitting up on his own. I was still voicing my concerns
regarding his eating issues but was waiting for his pediatrician to agree that
there was a real issue. Finally, at his one year checkup I asked her if he
could be referred to have early intervention therapy. I had friends who had
mentioned that their children had therapy for their eating issues and they had
made great improvements as a result. I was soooo happy that she agreed! Because
he had other delays the thought of Autism was entertained but not seriously
discussed at that point. So, on July 3, 2013 we took David to be assessed at
Infant Toddler Early Intervention. David was 14 months old.
I was
actually excited about the fact that we were going to be able to get therapy
for David. Although I was excited, I also was so nervous that my gut feelings
were right. I really didn’t want to be right. He was observed by a Speech
Therapist and an Occupational Therapist as well as the Early Intervention
Coordinator. As they observed David and asked us questions about his history
and our history I could tell there was more to work on than I had realized.
Brian and I had told them that he was just diagnosed with Aspergers and I had a
nephew that was on the spectrum as well. Brian has always been very open about
having Aspergers which was wonderful. He was happy that we were going to
finally be able to help David. After
they observed David for a good hour they went over their assessment results.
His
Occupational Therapist went over her observations and assessed David as being
at 6 months for Atypical Feeding, 11 months Cognitive, 11 months gross motor
and 11 months fine motor skills. That actually didn’t surprise me or upset me
that much because that is where I thought he was in those areas. I wasn’t thrilled
at the 6 month range for eating but it didn’t surprise me at all. But when I
heard where his Speech Therapist assessed him to be at I got a lump in my
throat. He was assessed at being at 6 months in both receptive and expressive
language......almost a full year behind. I knew he was delayed but I didn’t
realize how delayed he was emotionally and verbally and my heart just sank. I
knew that he wasn’t waiving "bye bye" and he was not mimicking me at
all. I think I just entered a temporary denial that his speech was delayed as
significantly as it was. Whenever the thought had crossed my mind I would just
try to put it in the back of my head. There is one thing thinking it on your
own and another thing when someone confirms it and you hear the words out loud.
I remember sitting there and trying not to cry. It was pretty tough to hear. To
some this may not seem like a big deal but to me it was. I wanted my son to
waive hi and bye bye. I wanted my son to participate in interactive songs and
games with me. I wanted to see my son clap his hands with me with laughter. I
wanted my son to blow kisses. I wanted my son to say "mama". I wanted
my son to speak....not just with words but through play and interaction with
books and playing with toys. At 14 months old he was not doing anything close
to it and my heart just hurt.
I
remember coming home that afternoon and reading his IFSP (Individualized Family
Service Plan) over and over again and having a bitter sweet feeling. I was so
thankful to the Lord for answering my prayer in providing therapy for David. I
knew that once we would start he would make great improvement. The plan documented
all of therapist findings as well as the plan that we put together for the best
therapy treatment specifically to fit David and his needs. It also discussed the goals that were set for
David to reach improvements by a certain date.
It was very specific with challenging but reachable goals for him.
As I sat there I just began to pray for David that the Lord would touch
him and help him with each step of improvement that he would need to make. I
prayed that He would give Brian and me wisdom to know what we needed to do to
help David and to teach him those things that he needed to learn. I prayed for
his therapists and for his therapy that we would be unified together as a team
in doing all that is best for David. I am happy to say that the Lord has
answered that prayer. David has amazing therapists that I will love forever!
They have been such a huge blessing to us and have been so wonderful with him.
When I have had my moments of feeling discouraged and frustrated they have
listened to my cries. They have listened with understanding and sweet
encouragement! They have made me feel like a wonderful Mommy who is doing her
best for her son. They have formed a huge attachment to David and they will
always be a part of our lives even when it is time for them to move on. I am
truly grateful for both of them. Precious gifts indeed.
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